The Art of Life Foundation will be holding a Fundraiser for Eliana Grace Lowenstein on Sunday, May 7, 2017 from 1:00 p.m. to 3:00 p.m. at Pic-A- Lilli Inn, 866 US Route 206, Shamong, NJ. The Art of Life Foundation Fundraiser will help the Lowenstein family with their medical expenses for the upcoming surgeries Eliana will endure.
The cost to attend the luncheon is $30.00 per person (this will include a donation). Additional monetary donations are welcome and appreciated. Please encourage family and friends to attend the luncheon as we gather together with the Lowenstein family and meet Eliana.
Only paid reservations accepted. Please make your check payable to: The Art of Life Foundation.
You may mail or bring your registration form and check to:
The Art of Life Foundation, 3747 Church Rd., Suite 4, Mt. Laurel, NJ 08054.
All attendees have the option of meeting at Pic-A-Lilli Inn at 1:00 p.m. by car or registering for the Motorcycle Run. Details of the Ride are attached.
If you have any questions, please call Keith or Laura at the Art of Life Foundation
Thank you for your support
Eliana Grace Lowenstein was born December 31, 2016 – two and a half weeks early, via emergency c-section due to her umbilical cord being wrapped five times around her neck. She was born weighing 5 lb 7 oz and measuring 18” long. Although she was breathing well and seemingly healthy, she still needed to be admitted to the NICU due to her cleft lip and palate and the concern for her ability to feed.
Eliana’s parents, Jim and Emily, learned of their baby’s “special features” at their 20 week ultrasound. They were told the baby had a unilateral cleft lip and palate and a hand anomaly on the right side – what looked like a missing digit or two. After her birth, the doctors could see the severity of her cleft palate and that her hand was a unique disfiguration with three fingers crossed and fused together, most likely due to an amniotic band that formed around the fingers in early utero.
After spending 8 days in the NICU and proving to be an excellent bottle feeder, Eliana was discharged and able to go home with her parents. Immediately, the doctor’s visits began – she had five appointments within the first week and would continue to have at least one a week for the next 4 months.
Eliana began a special therapy at 2 weeks of age, in preparation for her cleft repair surgeries, involving tape on her face holding her top lip together and an oral appliance manipulating her upper gum line to grow together rather than widen. With this therapy her cleft surgeries should be less invasive and more seamless.
Around four months of age (late April or early May), Eliana will undergo her first surgery, repairing her lip and nose. Then, around eleven months of age, she will have her palate repair surgery. Between six and eleven months of age, she will undergo hand surgery which will separate two of her three fused together fingers. Her estimated final surgery will be around six to eight years of age, after all her adult teeth have come in, where she will have a bone graft from her hip taken to repair and close her upper gum line.
Reaching out by Reaching within….wherever there is a need!